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A search strategy that allows users to define search parameters by selecting one or more data
description elements from a one-page form
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Primary elements of the EDELE framework for grouping web pages and data; Categories are Epidemiology of Decedents, Utilization and Experience of Care, Care System and Community Support; Subcategories are Decedent characteristics, Community support for end-of-life care, Healthcare environment and community characteristics, Utilization/Use of healthcare and community services, and Experience/ Quality/ Outcomes of Care
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How the data is visually presented: narrative, table, bar graph, line graph, pie graph, map, other
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Whether data can be searched or customized; there are three types of data – static (non-customizable); customized data via querying/searching; raw, and downloadable data for off-line use
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Epidemiology of Dying and End-of-Life Experience; a project whose goal is to make data about decedents and the experience of end-of-life care readily available via the Internet
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A set of linked tables that list the web pages and web sites included as links within edeledata.org, along with information about the data found on each site
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An organizational “tree” for categorizing data about decedents, healthcare services available, use of healthcare services at end of life, and satisfaction with care
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Pre-written questions linked to defined topics in the EDELE database; the questions mirror those frequently asked by people in the field of end-of-life care
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A link that takes the user to more information about a specific web page; the linked page is still on the EDELE site and includes information about the Main website for that web page
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An overarching site that may contain several web pages comprising relevant data for EDELE; users who find content of interest on a web page may want to visit the main website to look for additional data
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A mechanism for customizing the EDELE website; allows users to store bookmarks on the EDELE site, obtain updates targeted to their preferences, and request e-mail updates; requires registration and a login password
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One entry in the EDELE database containing a URL for a web page and associated information (topic, source, type of data, etc.) about the data provided on the page
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A picture of the web page (or main website) where data is found
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Secondary elements of the EDELE framework for grouping web pages and data; Topics include: Decedent demographics, Caregivers, Grief and bereavement care, Evaluated outcomes of care, Healthcare services available, and Community resources for end-of-life care.
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A link that opens the designated web page in a new Internet browser window; the new page is NOT on the EDELE website; the EDELE site remains open in the original Internet window
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