EDELE Search Tool

What is "My EDELE"

There are 314 records found in edeledata.org across 155 main websites for...


Key and Terms:
	Get more information about the record.
	Go directly to the live URL and leave edeledata.org.
A “Main website” is an overarching website that may contain multiple records.

There are 314 records found in edeledata.org across 155 main websites. View Pages: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 All

“AARP - Policy and Research” has 5 results below

Requirements on this main website: Registration? No — Payment? No — Special Software? No

AARP NC Caregiving Employee Internet Survey: Balancing Work and Family




	Record ID: 215

Presented by	AARP - Policy and Research
Primary Source of Data	AARP - NC Caregiving in the Workplace Survey
Additional Information	AARP North Carolina commissioned this study of employees in North Carolina to provide an employee’s view of caregiving issues in the state. Companies that participated in Caregiving in the Workplace forums throughout North Carolina in 2003-4 were invited to participate in this survey.
Most Relevant Pages	Page 5-8 of 18
Topics	Caregivers
Sub-topics	Caregiver Age; other demographics; Caregiver Availability; Caregiver Health, Social and Emotional Issues; Caregiver Relationship to deceased
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Narrative; Pie Graph
Data Updates	Data describe one point in time
Span of Years	Generally includes 1-2 years
Geographic Levels	State(s): North Carolina
URL for Web Page	http://assets.aarp.org/rgcenter/econ/nc_caregiving_internet....

Massachusetts AARP End of Life Survey 2005




	Record ID: 522

Presented by	AARP - Policy and Research
Primary Source of Data	AARP - Massachusetts End of Life Survey; AARP Public Policy Institute; American Medical Association; Centers for Medicare and Medicaid Services; Massachusetts AARP; US Census Bureau Data
Additional Information	This survey describes what AARP members in the state of Massachusetts desire, fear, expect, and know about end of life experience. This study was done as part of a general community survey conducted by the Massachusetts Commission on End of Life.
Most Relevant Pages	This data does not pertain to decendents.
Topics	Community Resources for EOL Care; Evaluated Outcomes and Quality of Care; Health Beliefs/ Cultural Factors; Indicators of social support needs; Individual involvement in healthcare; Perceived Quality of Care/Outcomes; Patient/Family Satisfaction
Sub-topics	Communication; Cultural factors; Documented preferences for EOL care; Faith community support; Pain and symptom management; Perceived need; Trust in providers; Use of advance directives/ surrogates/ HC proxies; Use of social support services
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Narrative
Data Updates	Data describe one point in time
Span of Years
Geographic Levels	State(s): Massachusetts
URL for Web Page	http://assets.aarp.org/rgcenter/health/ma_eol.pdf

Reforming the Health Care System - 2005 State Profile (General Community Characteristics)




	Record ID: 331

Presented by	AARP - Policy and Research
Primary Source of Data	AARP Public Policy Institute; American Medical Association; Centers for Medicare and Medicaid Services; US Census Bureau Data
Additional Information	This compilation of state profiles offers readers a snapshot of each state's health care landscape by providing comparable state-level and national data for nearly 100 indicators. This includes state profiles, recent data on state demographics, expenditures and financing, health status, health coverage and the uninsured, available resources, Medicare, Medicaid, utilization of services, and key trends. Also included are state rankings for nearly every health care indicator and state maps on current health care reform issues. In addition to the full report, a profile for each individual state is available separately.
Most Relevant Pages	Click on individual state and then page 3 of 8 - Demographics section.
Topics	General Community Characteristics
Sub-topics	Index of “rurality”; Median income, racial mix, age distribution; Percentage of population below poverty level
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative; Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	National: National data is available. States: State data is available.
URL for Web Page	http://assets.aarp.org/rgcenter/health/d18258_reform_05.pdf

State Health Care Briefs 2009: Why Health Care Reform is Important




	Record ID: 10

Presented by	AARP - Policy and Research
Primary Source of Data	AARP Public Policy Institute; Kaiser Family Foundation State Health Facts
Additional Information	This set of State Health Care Briefs provides a one-page overview of facts on health care data for each of the 50 states and the District of Columbia. Information is provided about each state’s older population, the uninsured, Medicare beneficiaries including those who fall into the “doughnut hole,” hospital re-admissions among Medicare beneficiaries, the distribution of Medicaid long-term care funds, and prescription drug spending.
Topics	End-of-Life Care (Last year of life); Healthcare Financing
Sub-topics	Health insurance coverage (including HMO); Prescription Benefit Coverage (Insurance); Use of hospitalizations
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative; Pie Graph
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	National: National data is available. States: State data is available.
URL for Web Page	http://www.aarp.org/health/health-care-reform/info-06-2009/s...

Valuing the Invaluable: A New Look at State Estimates of the Economic Value of Family Caregiving




	Record ID: 592

Presented by	AARP - Policy and Research
Primary Source of Data	AARP Public Policy Institute
Additional Information	Table 1: Number of Caregivers and the Economic Value of Caregiving, by State, 2006
Most Relevant Pages	Pg 3 of 8
Topics	Caregivers
Sub-topics	Caregiver Availability; Other
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Narrative; Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 1-2 years
Geographic Levels	States: State data is available.
URL for Web Page	http://assets.aarp.org/rgcenter/il/dd158_caregiving.pdf

“AcademyHealth: Advancing Research, Policy, and Practice” has 5 results below

Requirements on this main website: Registration? No — Payment? No — Special Software? No

AcadamyHealth 2005 Annual Research Meeting: Abstract #1 of the Shaping Medicare's Future Section




	Record ID: 437

Presented by	AcademyHealth
Primary Source of Data	AcademyHealth 2005 Annual Research Meeting
Additional Information	This site presents several lengthy abstracts describing presentations conducted during the "Shaping Medicare’s Future: An Evidence-Based Approach" and "The Part D Benefit: Going Boldly Where Medicare Has Not Gone Before" sections and "Related Posters" of the 2005 AcadamyHealth Research Meeting. For each abstract of interest you will find a different EDELE record.
Most Relevant Pages	Page 1, abstract 1of Paper Presentations, "Medicare Drug Coverage and Declining Disability Among the Elderly: Is There a Link?"
Topics	Health Status/ Cause of Death; Healthcare Financing
Sub-topics	Functional level in last year; Other
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	National: National data is available.
URL for Web Page	http://www.academyhealth.org/files/2005/medicare.pdf

AcadamyHealth 2005 Annual Research Meeting: Abstract #4 of the Shaping Medicare's Future section




	Record ID: 438

Presented by	AcademyHealth
Primary Source of Data	AcademyHealth 2005 Annual Research Meeting
Additional Information	This site presents several lengthy abstracts describing presentations conducted during the "Shaping Medicare’s Future: An Evidence-Based Approach" and "The Part D Benefit: Going Boldly Where Medicare Has Not Gone Before" sections and "Related Posters" of the 2005 AcadamyHealth Research Meeting. For each abstract of interest you will find a different EDELE record.
Most Relevant Pages	Page 2, Abstract 4 of Paper Presentation, "Comparing Four-Year Health Outcomes of Elderly Adults Enrolled in Traditional Medicare (FFS) VS. Medicare HMOS"
Topics	Health Status/ Cause of Death; Healthcare Financing
Sub-topics	Cognitive level in last year; Functional level in last year; Health insurance coverage (including HMO); SF36 in last year
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	National: National data is available.
URL for Web Page	http://www.academyhealth.org/files/2005/medicare.pdf

AcademyHealth 2005 Research Meeting: Abtract #2 of The Part D Benefit: Going Boldly Where Medicare Has Not Gone Before section




	Record ID: 439

Presented by	AcademyHealth
Primary Source of Data	AcademyHealth 2005 Annual Research Meeting
Additional Information	This site presents several lengthy abstracts describing presentations conducted during the "Shaping Medicare’s Future: An Evidence-Based Approach" and "The Part D Benefit: Going Boldly Where Medicare Has Not Gone Before" sections and "Related Posters" of the 2005 AcadamyHealth Research Meeting. For each abstract of interest you will find a different EDELE record.
Most Relevant Pages	Page 5, Abstract 2 of Paper Presentations, "Generosity of Retiree Drug Benefits and Essential Medication use among Aged Medicare Beneficiaries with Employer-Sponsored Health Insurance"
Topics	Healthcare Financing; Healthcare Policy and Laws
Sub-topics	Health insurance coverage (including HMO); Other; Other
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	National: National data is available.
URL for Web Page	http://www.academyhealth.org/files/2005/medicare.pdf

AcademyHealth 2005 Research Meeting: Abtract #3 of The Part D Benefit: Going Boldly Where Medicare Has Not Gone Before section




	Record ID: 440

Presented by	AcademyHealth
Primary Source of Data	AcademyHealth 2005 Annual Research Meeting
Additional Information	This site presents several lengthy abstracts describing presentations conducted during the "Shaping Medicare’s Future: An Evidence-Based Approach" and "The Part D Benefit: Going Boldly Where Medicare Has Not Gone Before" sections and "Related Posters" of the 2005 AcadamyHealth Research Meeting. For each abstract of interest you will find a different EDELE record.
Most Relevant Pages	Page 5, Abstract 3 for Paper Presentations, "Prescription Drug Expenditures for Medicare Managed Care Beneficiaries in the Last Year of Life"
Topics	Costs of Care; Demographics/Social Factors; Health Status/ Cause of Death; Healthcare Financing; Healthcare Policy and Laws
Sub-topics	Diagnoses in last year; Gender; Income; Medicare costs in last year of life; Other; Other; Out-of-pocket expenses; Race/ethnic group
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	National: National data is available.
URL for Web Page	http://www.academyhealth.org/files/2005/medicare.pdf

AcademyHealth 2005 Research Meeting: Abtract #4 of The Part D Benefit: Going Boldly Where Medicare Has Not Gone Before section




	Record ID: 450

Presented by	AcademyHealth
Primary Source of Data	AcademyHealth 2005 Annual Research Meeting
Additional Information	This site presents several lengthy abstracts describing presentations conducted during the "Shaping Medicare’s Future: An Evidence-Based Approach" and "The Part D Benefit: Going Boldly Where Medicare Has Not Gone Before" sections and "Related Posters" of the 2005 AcadamyHealth Research Meeting. For each abstract of interest you will find a different EDELE record.
Most Relevant Pages	Page 6, Abstract #4 of Paper Presentations, "Prescription Drug Coverage and Mortality Risks among Aged Medicare Beneficiaries"
Topics	Health Status/ Cause of Death; Healthcare Financing; Healthcare Policy and Laws
Sub-topics	Functional level in last year; Other; Other
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	National: National data is available.
URL for Web Page	http://www.academyhealth.org/files/2005/medicare.pdf

“Agency for Healthcare Research and Quality: Research Findings” has 4 results below

Requirements on this main website: Registration? No — Payment? No — Special Software? No

Long-Term Care (LTC) among the Elderly in Community and Institutional Settings




	Record ID: 259

Presented by	Agency for Healthcare Research and Quality
Primary Source of Data	Agency for Healthcare Research and Quality
Additional Information	This data is from the 1994 National Long Term Care Survey. Receipt of long-term care is defined as receiving human assistance or standby help with at least one of six ADLs and eight IADLs. The ADLs included are eating, transfer, toileting, getting around inside, dressing, and bathing. The IADLs are meal preparation, grocery shopping, light housework, laundry, financial management, taking medication, telephoning, and getting around outside.
Topics	End-of-Life Care (Last year of life)
Sub-topics	Other locations of care
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 1-2 years
Geographic Levels	National: National data is available.
URL for Web Page	http://www.ahrq.gov/research/ltcusers/tab4use.htm

Long-Term Care: Characteristics of Elderly Users




	Record ID: 260

Presented by	Agency for Healthcare Research and Quality
Primary Source of Data	Agency for Healthcare Research and Quality
Additional Information	This data is taken from the 1984 and 1994 National Long-Term Care Surveys. Receipt of long-term care is defined as receiving human assistance or standby help with at least one of six ADLs and eight IADLs. The ADLs included are eating, transfer, toileting, getting around inside, dressing, and bathing. The IADLs are meal preparation, grocery shopping, light housework, laundry, financial management, taking medication, telephoning, and getting around outside.
Topics	End-of-Life Care (Last year of life)
Sub-topics	Other locations of care
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	National: National data is available.
URL for Web Page	http://www.ahrq.gov/research/ltcusers/tab5use.htm

Advance Care Planning: Preferences for Care at the End of Life




	Record ID: 258

Presented by	Agency for Healthcare Research and Quality
Primary Source of Data	Agency for Healthcare Research and Quality
Additional Information	Findings resulting from research funded by the Agency for Healthcare Research and Quality (AHRQ) are discussed. This research can help providers offer end-of-life care based on preferences held by the majority of patients under similar circumstances. Forty-nine studies/publications are reviewed and results are presented. Figures and Tables can be downloaded.
Topics	Individual involvement in healthcare; Perceived Quality of Care/Outcomes; Patient/Family Satisfaction
Sub-topics	Communication; Documented preferences for EOL care; Use of advance directives/ surrogates/ HC proxies
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Narrative; Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	National: National data is available. Other: Other geographic data is available.
URL for Web Page	http://www.ahrq.gov/research/endliferia/endria.htm

End-of-Life Care and Outcomes




	Record ID: 479

Presented by	Agency for Healthcare Research and Quality
Primary Source of Data	Agency for Healthcare Research and Quality
Additional Information	This report addresses the following key questions: !. What outcome variables are valid indicators of the quality of the end-of-life experience for the dying person and for the surviving loved ones? 2. What patient, family, and health care system factors are associated with better or worse outcomes at end of life? 3. What processes and interventions are associated with improved or worsened outcomes? 4. What are future research directions for improving end-of-life care?
Topics	Evaluated Outcomes and Quality of Care
Sub-topics	Bereavement outcomes; Pain and symptom management; Quality of dying and death; Quality of life
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	National: National data is available.
URL for Web Page	http://www.ahrq.gov/clinic/epcsums/eolsum.htm

“Alabama Department of Public Health Center for Health Statistics” has 3 results below

Requirements on this main website: Registration? No — Payment? No — Special Software? No

Alabama Mortality Statistics




	Record ID: 344

Presented by	Alabama Department of Public Health
Primary Source of Data	Alabama Center for Health Statistics
Additional Information	This site links you to various mortality statistics: accident; cancer; diabetes; heart disease; respiratory disease; stroke; other; and general.
Topics	Demographics/Social Factors; Health Status/ Cause of Death
Sub-topics	Age; Cause of death; Gender; Race/ethnic group
Data Type(s)	Customized Data via Querying/Searching; Static (non-customizable) Data
Data Display(s)	Bar Graph; Line Graph; Narrative; Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 3 or more years
Geographic Levels	State(s): Alabama Counties: County data is available.
URL for Web Page	http://ph.state.al.us/chs/HealthStatistics/Mortality/MORTALI...

Alabama Mortality Statistics (Cancer)




	Record ID: 343

Presented by	Alabama Department of Public Health
Primary Source of Data	Alabama Center for Health Statistics
Additional Information	The site provides access to special reports regarding cancer deaths, as well as access to tables that present rates of different types of cancer.
Topics	Demographics/Social Factors; Health Status/ Cause of Death
Sub-topics	Age; Cause of death; Gender; Race/ethnic group
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Line Graph; Narrative; Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 3 or more years
Geographic Levels	State(s): Alabama
URL for Web Page	http://ph.state.al.us/chs/HealthStatistics/Mortality/cancer....

Alabama Mortality Statistics (County Specific Data)




	Record ID: 342

Presented by	Alabama Department of Public Health
Primary Source of Data	Alabama Center for Health Statistics
Additional Information	This site allows you to choose any Alabama county by year.
Topics	Demographics/Social Factors; Health Status/ Cause of Death
Sub-topics	Age; Cause of death; Gender; Race/ethnic group
Data Type(s)	Customized Data via Querying/Searching; Static (non-customizable) Data
Data Display(s)	Bar Graph; Line Graph; Narrative; Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 3 or more years
Geographic Levels	State(s): Alabama Counties: County data is available.
URL for Web Page	http://ph.state.al.us/chs/HealthStatistics/CountyData/Map.ht...

“Alaska Bureau of Vital Statistics” has 1 results below

Requirements on this main website: Registration? No — Payment? No — Special Software? No

Alaska Mortality Statistics




	Record ID: 356

Presented by	Alaska Division of Public Health
Primary Source of Data	Alaska Bureau of Vital Statistics
Additional Information	This site links you to various Alaska mortality tables.
Topics	Demographics/Social Factors; Health Status/ Cause of Death
Sub-topics	Age; Cause of death; Gender; Race/ethnic group
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Map; Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 3 or more years
Geographic Levels	State(s): Alaska Counties: County data is available. Other: Other geographic data is available.
URL for Web Page	http://www.hss.state.ak.us/dph/bvs/data/default.htm

There are 314 records found in edeledata.org across 155 main websites. View Pages: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 All

Note to visitors: The information provided above was researched and organized by EDELE staff. The look and content of the web pages and websites listed here may have changed since they were recorded in the EDELE database. (Some sites may no longer be available.) If you find that any of the information on this page is out-of date or incorrect, or if you have problems reaching the designated URL, please let EDELE staff know by filling out an error-report e-mail.

The URLs lead to outside websites that are controlled by the organization(s) that own those sites, not by EDELE. If you have any feedback, questions, comments, or concerns about the information on these outside sites, contact the organization hosting that site, not EDELE.