North Carolina – Data on Dying and End-of-Life Experience

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2007 Hospice Utilization in NC & SC




	Record ID: 190

Presented by	The Carolinas Center for Hospice and End of Life Care
Primary Source of Data	NC Annual Data Supplement to Licensure Application; SC Medicaid Client Summary Report (DHHS)
Topics	Healthcare Services Available
Sub-topics	Hospice penetration
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 3 or more years
Geographic Levels	State(s): North Carolina; South Carolina
URL for Web Page	http://www.carolinasendoflifecare.org/Statistics2007.html

AARP NC Caregiving Employee Internet Survey: Balancing Work and Family




	Record ID: 215

Presented by	AARP - Policy and Research
Primary Source of Data	AARP - NC Caregiving in the Workplace Survey
Additional Information	AARP North Carolina commissioned this study of employees in North Carolina to provide an employee’s view of caregiving issues in the state. Companies that participated in Caregiving in the Workplace forums throughout North Carolina in 2003-4 were invited to participate in this survey.
Most Relevant Pages	Page 5-8 of 18
Topics	Caregivers
Sub-topics	Caregiver Age; other demographics; Caregiver Availability; Caregiver Health, Social and Emotional Issues; Caregiver Relationship to deceased
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Narrative; Pie Graph
Data Updates	Data describe one point in time
Span of Years	Generally includes 1-2 years
Geographic Levels	State(s): North Carolina
URL for Web Page	http://assets.aarp.org/rgcenter/econ/nc_caregiving_internet....

Characteristics and Health of Caregivers and Care Recipients --- North Carolina, 2005




	Record ID: 586

Presented by	Centers for Disease Control & Prevention
Primary Source of Data	2005 North Carolina BRFSS Caregiver project
Additional Information	A new CDC-funded study provides state-level data on the health and circumstances of caregivers and care recipients in North Carolina in 2005. This study uses the recently developed optional Caregiver Module for the Behavioral Risk Factor and Surveillance Survey (BRFSS).
Most Relevant Pages	Tables 1-3
Topics	Caregivers
Sub-topics	Caregiver Age; other demographics; Caregiver Availability; Caregiver Health, Social and Emotional Issues; Caregiver Relationship to deceased; Other
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative; Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 1-2 years
Geographic Levels	State(s): North Carolina
URL for Web Page	http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5621a3.htm

Facts on Dying (State Profiles)




	Record ID: 36

Presented by	Center for Gerontology and Health Care Research at the Brown Medical School
Primary Source of Data	HCFA - Minimum Data Set; National Center for Health Statistics
Additional Information	For each state a profile is provided of 12 end-of-life indicators including: site of death, advance directive use, DNR, artificial nutrition and hydration, and feeding tube use.
Topics	End-of-Life Care (Last year of life); Evaluated Outcomes and Quality of Care; Health Status/ Cause of Death; Individual involvement in healthcare
Sub-topics	Cognitive level in last year; Location of death; Pain and symptom management; Treatments (e.g. Surgery, Chemotherapy, Feeding Tubes); Use of advance directives/ surrogates/ HC proxies
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	National: National data is available. States: State data is available.
URL for Web Page	http://www.chcr.brown.edu/dying/stateprofiles.htm

Facts on Dying (Change in Indicators Over Time)




	Record ID: 37

Presented by	Center for Gerontology and Health Care Research at the Brown Medical School
Primary Source of Data	HCFA - Minimum Data Set; National Center for Health Statistics
Additional Information	Change in 12 indicators of end-of-life care over 1999-2001, by state. Patients are primarily though not exclusively nursing home residents. Indicators include site of death, pain management, advance directive use, DNR, artificial hydration and nutrition, and feeding tube use.
Topics	End-of-Life Care (Last year of life); Evaluated Outcomes and Quality of Care; Health Status/ Cause of Death; Individual involvement in healthcare
Sub-topics	Cognitive level in last year; Location of death; Pain and symptom management; Treatments (e.g. Surgery, Chemotherapy, Feeding Tubes); Use of advance directives/ surrogates/ HC proxies
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Line Graph
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	States: State data is available.
URL for Web Page	http://www.chcr.brown.edu/dying/CHANGEOVERTIME.HTM

Hospice Facts and Statistics




	Record ID: 575

Presented by	National Association for Home Care and Hospice
Primary Source of Data	Centers for Medicare and Medicaid Services
Most Relevant Pages	Table 1: Number of Medicare-certified Hospices, by Auspice, 1984-2008; Table 2: Number of Medicare-certified Hospices and Program Payments, by State, 2007 ; Table 3: Distribution of Hospice Primary Payment Source, 1996 & 2007; Table 5: Medicare Hospice Outlays, Clients, Days per Client, and Dollar Amount Per Client, FY89-FY2003 and CY2004-CY2006; Table 7: Medicare Hospice Utilization by Type of Care, FY2002-FY2005; Table 10: Medicaid Hospice Outlays, FY 2004-2010; and more..... (pgs 8-19)
Topics	Costs of Care; End-of-Life Care (Last year of life); Healthcare Services Available
Sub-topics	# of hospice programs; Hospice costs in last year of life; Hospice penetration; Medicare costs in last year of life; Use of hospice or other palliative care
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	States: State data is available.
URL for Web Page	http://www.nahc.org/facts/HospiceStats09.pdf

Medicaid Benefits - Online Database: Hospice Care (2008)




	Record ID: 409

Presented by	Kaiser Family Foundation
Primary Source of Data	Medicaid State Plans
Additional Information	Medicaid Benefits survey data from 2003, 2004, 2006 and 2008 with information about benefits covered, limits, co-payments and reimbursement methodologies for the 50 states, the District of Columbia and the Territories. Also indicates whether benefits extend to the Categorically Needy (CN), the Medically Needy (MN) or both. See the state-specific footnotes for additional information.
Topics	Healthcare Policy and Laws
Sub-topics	Medicaid benefit for hospice, nursing home, palliative care, pediatric end-of-life care
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Map; Narrative; Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 1-2 years
Geographic Levels	States: State data is available. Other: Other geographic data is available.
URL for Web Page	http://medicaidbenefits.kff.org/service.jsp?yr=4&so=0&cat=1&...

Medicare Hospice Utilization by State - Calendar Year 2006




	Record ID: 548

Presented by	U.S. Department of Health and Human Services
Primary Source of Data	Centers for Medicare and Medicaid Services
Additional Information	Total Patients, Total Reimbursement, Total Covered Days, Total Covered Hours, Total Covered Procedures, Average Reimbursement Per Patient, Average Days Per Patient
Topics	Costs of Care; End-of-Life Care (Last year of life)
Sub-topics	Hospice costs in last year of life; Medicare costs in last year of life; Use of hospice or other palliative care
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	States: State data is available.
URL for Web Page	http://www.cms.hhs.gov/MedicareFeeforSvcPartsAB/Downloads/Ho...

NC & SC 2007 Hospice Patient Deaths by Location




	Record ID: 232

Presented by	The Carolinas Center for Hospice and End of Life Care
Primary Source of Data	NC Annual Data Supplement to Licensure Application
Topics	End-of-Life Care (Last year of life)
Sub-topics	Location of death
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Pie Graph
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	State(s): North Carolina; South Carolina
URL for Web Page	http://www.carolinasendoflifecare.org/Statistics2007.html

NC & SC 2007 Hospice Patient Demographics




	Record ID: 231

Presented by	The Carolinas Center for Hospice and End of Life Care
Primary Source of Data	SC Medicaid Client Summary Report (DHHS)
Additional Information	NC & SC Hospice Patients Admitted by Age, Race and Diagnosis.
Topics	Demographics/Social Factors; Health Status/ Cause of Death
Sub-topics	Age; Diagnoses in last year; Race/ethnic group
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Pie Graph
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	State(s): North Carolina; South Carolina
URL for Web Page	http://www.carolinasendoflifecare.org/Statistics2007.html

NC Detailed Mortality Statistics




	Record ID: 386

Presented by	NC DHHS - State Center for Health Statistics
Primary Source of Data	NC State Center for Health Statistics
Additional Information	Can query data by year, race, age, gender, ethnicity or cause of death - statewide or by county.
Topics	Demographics/Social Factors; Health Status/ Cause of Death
Sub-topics	Age; Cause of death; Gender; Race/ethnic group
Data Type(s)	Customized Data via Querying/Searching; Static (non-customizable) Data
Data Display(s)	Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 3 or more years
Geographic Levels	State(s): North Carolina Counties: County data is available.
URL for Web Page	http://www.schs.state.nc.us/SCHS/data/dms/dms.cfm

NC Medicaid Expenditures for the Elderly (Medicaid Benefit for Hospice)




	Record ID: 84

Presented by	NC DHHS - Division of Medical Assistance
Primary Source of Data	NC DHHS - Division of Medical Assistance
Additional Information	State Medicaid Report - Medicaid expenditures for the elderly - shows % going to hospice.
Most Relevant Pages	Pg 16-19 of 20
Topics	Healthcare Policy and Laws
Sub-topics	Medicaid benefit for hospice, nursing home, palliative care, pediatric end-of-life care
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	State(s): North Carolina
URL for Web Page	http://www.ncdhhs.gov/dma/2007report/2007tables.pdf

NC State Center for Health Statistics - Vital Statistics Data




	Record ID: 133

Presented by	NC DHHS - State Center for Health Statistics
Primary Source of Data	NC State Center for Health Statistics
Additional Information	Leading cause of death, detailed mortality statistics, infant mortality and child deaths.
Topics	Demographics/Social Factors; Health Status/ Cause of Death
Sub-topics	Age; Cause of death; Gender; Race/ethnic group
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	State(s): North Carolina Counties: County data is available. Other: Other geographic data is available.
URL for Web Page	http://www.schs.state.nc.us/SCHS/data/vitalstats.cfm

Pain Policy Database of State Laws and Regulations




	Record ID: 511

Presented by	Pain & Policy Studies Group University of Wisconsin Comprehensive Cancer Center
Primary Source of Data	State Regulations, Laws and Policies
Additional Information	Pain Policy - database of State Laws, Regulations, and Other Official Governmental Policies
Most Relevant Pages	Scroll down to get a US map to select a specific state or go to alpabetically listing of states.
Topics	Healthcare Policy and Laws
Sub-topics	Narcotic prescribing laws; Pain management laws
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Map; Narrative; Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 3 or more years
Geographic Levels	States: State data is available.
URL for Web Page	http://www.painpolicy.wisc.edu/matrix.htm

State Health Facts Online (Medicare Hospice Days and Prescription Benefit Coverage)




	Record ID: 56

Presented by	Kaiser Family Foundation
Primary Source of Data	Centers for Medicare and Medicaid Services - Office of Information Services
Additional Information	Statehealthfacts.org provides data on more than 500 health topics. Navigate the site by choosing a category or an individual state profile. Information is updated annually.
Most Relevant Pages	Scroll down the left hand side to select information about the Medicare Prescription Drug Plan and hospice use (located under Medicare Service Use).
Topics	End-of-Life Care (Last year of life); Healthcare Financing
Sub-topics	Prescription Benefit Coverage (Insurance); Use of hospice or other palliative care
Data Type(s)	Raw/Downloadable Data for offline use; Static (non-customizable) Data
Data Display(s)	Map; Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	National: National data is available. States: State data is available.
URL for Web Page	http://www.statehealthfacts.org/comparecat.jsp?cat=6

“AARP - Policy and Research” has 3 results below

Requirements on this main website: Registration? No — Payment? No — Special Software? No

Reforming the Health Care System - 2005 State Profile (General Community Characteristics)




	Record ID: 331

Presented by	AARP - Policy and Research
Primary Source of Data	AARP Public Policy Institute; American Medical Association; Centers for Medicare and Medicaid Services; US Census Bureau Data
Additional Information	This compilation of state profiles offers readers a snapshot of each state's health care landscape by providing comparable state-level and national data for nearly 100 indicators. This includes state profiles, recent data on state demographics, expenditures and financing, health status, health coverage and the uninsured, available resources, Medicare, Medicaid, utilization of services, and key trends. Also included are state rankings for nearly every health care indicator and state maps on current health care reform issues. In addition to the full report, a profile for each individual state is available separately.
Most Relevant Pages	Click on individual state and then page 3 of 8 - Demographics section.
Topics	General Community Characteristics
Sub-topics	Index of “rurality”; Median income, racial mix, age distribution; Percentage of population below poverty level
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative; Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	National: National data is available. States: State data is available.
URL for Web Page	http://assets.aarp.org/rgcenter/health/d18258_reform_05.pdf

State Health Care Briefs 2009: Why Health Care Reform is Important




	Record ID: 10

Presented by	AARP - Policy and Research
Primary Source of Data	AARP Public Policy Institute; Kaiser Family Foundation State Health Facts
Additional Information	This set of State Health Care Briefs provides a one-page overview of facts on health care data for each of the 50 states and the District of Columbia. Information is provided about each state’s older population, the uninsured, Medicare beneficiaries including those who fall into the “doughnut hole,” hospital re-admissions among Medicare beneficiaries, the distribution of Medicaid long-term care funds, and prescription drug spending.
Topics	End-of-Life Care (Last year of life); Healthcare Financing
Sub-topics	Health insurance coverage (including HMO); Prescription Benefit Coverage (Insurance); Use of hospitalizations
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Narrative; Pie Graph
Data Updates	Data are updated regularly
Span of Years	Generally includes 1-2 years
Geographic Levels	National: National data is available. States: State data is available.
URL for Web Page	http://www.aarp.org/health/health-care-reform/info-06-2009/s...

Valuing the Invaluable: A New Look at State Estimates of the Economic Value of Family Caregiving




	Record ID: 592

Presented by	AARP - Policy and Research
Primary Source of Data	AARP Public Policy Institute
Additional Information	Table 1: Number of Caregivers and the Economic Value of Caregiving, by State, 2006
Most Relevant Pages	Pg 3 of 8
Topics	Caregivers
Sub-topics	Caregiver Availability; Other
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Narrative; Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 1-2 years
Geographic Levels	States: State data is available.
URL for Web Page	http://assets.aarp.org/rgcenter/il/dd158_caregiving.pdf

“American Journal of Respiratory and Critical Care Medicine -- Online” has 1 results below

Requirements on this main website: Registration? No — Payment? No — Special Software? No

A National Survey of End-of-life Care for Critically Ill Patients




	Record ID: 599

Presented by	American Journal of Respiratory and Critical Care Medicine
Primary Source of Data	Survey by Veterans Administration Medical Center, White River Junction, Vermont
Additional Information	This study obtained data from 131 ICUs at 110 institutions in 38 states. It describes the use of or withdrawal of life support and CPR, and whether DNR's were in place.
Most Relevant Pages	Table 2 presents patient data on ICU deaths, full or withholding CPR, and withholding or withdrawing life support Table 3 presents characteristics of the hospitals in the study including the region they were located, admissions, ICU deaths, CPR, DNR, withholding or withdrawing life support
Topics	End-of-Life Care (Last year of life); Individual involvement in healthcare
Sub-topics	Treatments (e.g. Surgery, Chemotherapy, Feeding Tubes); Use of advance directives/ surrogates/ HC proxies; Use of ICU
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Line Graph; Narrative; Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	States: State data is available. Other: Other geographic data is available.
URL for Web Page	http://ajrccm.atsjournals.org/cgi/content/full/158/4/1163

“Cecil G. Sheps Center at UNC” has 2 results below

Requirements on this main website: Registration? No — Payment? No — Special Software? No

County Level Estimates of the Number of Uninsured in NC - 2005 Update




	Record ID: 23

Presented by	Cecil G Sheps Center, University of NC at Chapel Hill
Primary Source of Data	US Census Bureau Data
Additional Information	This report was issued by the Cecil G. Sheps Center for Health Services Research at the University of North Carolina at Chapel Hill. Table 1 presents the county-specific estimates of the number and percent of children, adults, and individuals below age 65 who lacked health insurance in 2005. The estimates reveal substantial variation across counties in the percentage of the population without insurance.
Most Relevant Pages	Table 1 on page 4 and 5
Topics	Healthcare Financing
Sub-topics	Health insurance coverage (including HMO)
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Narrative; Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 3 or more years
Geographic Levels	State(s): North Carolina Counties: County data is available.
URL for Web Page	http://www.shepscenter.unc.edu/new/NorthCarolinaUninsured200...

NC Health Professions Data System (# of Providers by County)




	Record ID: 24

Presented by	Cecil G Sheps Center, University of NC at Chapel Hill
Primary Source of Data	NC AHEC Program; UNC-CH Office of the Provost (Health Affairs)
Additional Information	The HPDS has been developed at the Cecil G. Sheps Center for Health Services Research at the University of North Carolina at Chapel Hill to collect and disseminate timely and reliable data on selected licensed health professionals in North Carolina. Descriptive data are maintained for: chiropractors, dental hygienists, dentists, licensed practical nurses, nurse practitioners registered with the NC Medical Board, optometrists pharmacists, physical therapists, physical therapy assistants, physician assistants registered with the NC Medical Board, physicians (doctors of medicine and osteopathy), physicians in residency training, podiatrists, practicing psychologists, psychological associates registered nurses and respiratory therapists.
Topics	Healthcare Services Available
Sub-topics	Individual providers by specialty
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Table
Data Updates	Data are updated regularly
Span of Years	Generally includes 3 or more years
Geographic Levels	State(s): North Carolina Counties: County data is available.
URL for Web Page	http://www.shepscenter.unc.edu/hp/profiles.htm

“Center to Advance Palliative Care” has 1 results below

Requirements on this main website: Registration? No — Payment? No — Special Software? No

A State-by-State Report Card on Access to Palliative Care in Our Nation’s Hospitals




	Record ID: 616

Presented by	Center to Advance Palliative Care
Primary Source of Data	National Palliative Care Research Center
Additional Information	This report examines geographic variations at the state level in order to assess whether seriously ill patients throughout the United States are receiving equitable care. Specifically, the report examines: Patient access to palliative care services in hospitals; Patient access to board-certified palliative medicine physicians; Medical student access to clinical training in palliative medicine; Physician access to specialty-level training in palliative medicine.
Most Relevant Pages	Tables 1 & 2 - pgs 36-39 of 44.
Topics	Healthcare Services Available
Sub-topics	# providers certified in palliative care; Hospitals (number, size, profit status, palliative care services)
Data Type(s)	Static (non-customizable) Data
Data Display(s)	Bar Graph; Map; Narrative; Table
Data Updates	Data describe one point in time
Span of Years	Generally includes 1-2 years
Geographic Levels	National: National data is available. States: State data is available.
URL for Web Page	http://www.capc.org/reportcard/state-by-state-report-card.pd...

There are 63 records found in edeledata.org across 26 main websites. View Pages: 1 2 3 4 5 6 All

Note to visitors: The information provided above was researched and organized by EDELE staff. The look and content of the web pages and websites listed here may have changed since they were recorded in the EDELE database. (Some sites may no longer be available.) If you find that any of the information on this page is out-of date or incorrect, or if you have problems reaching the designated URL, please let EDELE staff know by filling out an error-report e-mail.

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